The support, education and advocacy offered by the HFA serves a vision to improve the care and quality for anyone with a bleeding disorder.
The hemophilia A resources you want.
Educational tools to help manage your experience with a bleeding disorder.
Information and resources.
Definitions, descriptions, and graphics working together to answer your (and your family’s) questions about bleeding disorders.
Key patient advocacy groups for the hemophilia A community.
The NHF is laser-focused on finding better treatments and cures for inherited bleeding disorders and they pursue that mission using education, advocacy and research.
Your questions, answered.
Question: Our son was just diagnosed with hemophilia A. Where can we turn for support?
Answer: Nobody needs to walk this path alone. That’s why we offer the support of regional Hemophilia Community Liaisons to support you on your Esperoct® journey. Those with hemophilia A and their families can also find a wealth of support and understanding from the National Hemophilia Foundation (NHF), the Hemophilia Federation of America (HFA), and other advocacy groups.
Question: What is an advocacy group?
Answer: Advocacy groups like the NHF and the HFA help bring the bleeding disorders community together. Their goals usually include amplifying the patient or caregiver voice, affecting public policy, fundraising, and protecting the interests of BD community.